Friday, January 24, 2014

"It's positive, but..."

I'm pretty sure I'm good if I NEVER hear those words again. I think I officially have PTSD surrounding that simple phrase... my heart stops, my stomach twists, my eyes tear. Essentially, I received a positive BETA today... positive as in 6. The nurse followed up her "It's positive, but" with "it's really low and it's unlikely that it's viable." Yea, I know. I've heard those words before. Twenty-eight months ago a nurse called to tell me "It's positive, but you're likely miscarrying." Yea, I remember exactly how that feels.

My infertile sisters all see the writing on the wall so to speak, but there are a lot of other people who were waiting for news today, so let me explain. The test assigns a number based on how much hCG is in your blood. Anything over 5 is considered pregnant, so yes, "technically" I'm pregnant. However, I'm essentially at the "missed period" stage meaning I should be able to take a home pregnancy test. HPTs vary in their sensitivity, but a First Response Early Result home pregnancy test (the gold standard) has a sensitivity level of 25... I would not get a positive. Other tests like the Error Proof Test or ClearBlue Easy Digital have a sensitivity level of 40 and 50 respectively... definitely not getting a positive. The "positive" result most likely means that one or both of the embryos attempted to implant, hCG was created and began to circulate, but soon after the embryo deteriorated and so the hCG level is now falling.

Basically, I'm miscarrying, it's just extremely early. The doctor won't even refer to it as a miscarriage; he'll call it a chemical pregnancy... but we won't use that hateful term around here. It makes what's happening sound like a figment of my imagination or a pregnancy in numbers only. Well, it wasn't in numbers only, the numbers wouldn't be there if it didn't happen. The strange thing is, I'm pretty sure I'd feel the exact same way if it the numbers had come back as a 3 or a 0. To me, my babies were alive, and now they're not. Sure they weren't breathing or looking anything like a baby, just a clump of less than perfect cells, but they were growing. I would have mourned the loss of our two embryos just as intensely if the BETA had been negative. The only additional bitter part about this is that it really hurts to come so close... to know they tried to implant, to know they survived at least a few days beyond the transfer. Sure, a positive BETA would have still meant we were ages away from a bring home baby, but we were closer than we've been in the last twenty-eight months.

I really can't process what this means going forward yet. Does this mean my eggs suck more than we knew? Are all of our embryos destined to die from early chromosomal issues? Is there more at play here like hostile uterine environment or killer cells? These are questions for another day. Right now, I'm just sad. In my heart, it feels like two of my babies have died, and well that just hurts... a lot.

I do of course have to stay on the medications and retest on Monday... it's standard procedure anytime there is a positive BETA. Many of you will want to know if there is any hope. I'll say this, it's incredibly unlikely. There are a wide range of potential results from a BETA at 4 weeks... anything from a 5 to 426. But keep in mind, those levels don't all become take home babies, meaning those aren't the numbers from only successful pregnancies, those are numbers from all pregnancies, ones that end in a day, a week, a month, the first trimester... they are all included. The American Pregnancy Association suggests that there are a few possible reasons for low hCG: a miscalculation of pregnancy date (not possible for me; we know exactly how far along I should be), an ectopic pregnancy (very unlikely with IVF), a blighted ovum or miscarriage. So yes, technically, I'm pregnant, and yes, things could turn around, but in this situation, knowing what we do and with our history, it's unlikely. The test Monday will most likely confirm a hCG level below 5 and I'll come off of all medications. However, I will say that I believe in a God of miracles, so I'm not discounting that He could show up in a mighty, mighty way... we're abundantly ready if He chooses to do so.

Until then, we wait. Thank you all for your well wishes and prayers today. Test day is incredibly stressful and I can't tell you how much your texts and messages warmed my heart during the wait. It feels wonderful to know that so many people are hopeful for us. Your encouragement means the world to us.

"Those who hope in the Lord will renew their strength"- Isaiah 40:31

Lord, give me strength.

41 comments:

  1. Amanda, I was introduced to your blog through Kirby Russell. I nanny for her little boy Teddy. We have been suffering from infertility for over 2 yrs and just went through our first IVF cycle ( we transferred on Tuesday). Kirby suggested your blog to me knowing that you had gone through IVF so I have been following you the last couple weeks and have been praying daily for you. You have especially been on my heart today. I'm so so sorry your HCG came back so low. I will be praying for you and your husband, and your little embryo during this time. I hope that God will comfort you and wrap you in His loving embrace. -Beth Slatery

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  2. Oh Amanda, I have tears in my eyes. I have been checking blogger all day to see your update. I love, love, love that verse from Isaiah. Just reading it makes me cry. I will be praying for a miracle, that your HCG skyrockets over the weekend, and that the Lord gives you strength. Thinking of you and sending love.

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  3. Oh Amanda. I have no words. But, I do have hope. I have a lot of it for you. Know I'm praying so very hard for you and am holding you so very close to my heart. XOXO

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  4. Amanda, I'm so sorry. :( I know those words don't help. It is so very hard. :( Ugh, I hate it for you, friend. At the end of a long wait ... it's just hard.

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  5. I am so sorry you got that call. Nothing I can say will make it better, but know I'm sending so much love and huge hugs your way.

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  6. I just wanted to say that I did not get a positive HPT (sensity level 25) until I was six and a half weeks pregnant...way past the day of my missed period. I am now 20 weeks pregnant with a healthy baby boy, so there is hope...don't give up just yet.

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  7. Amanda, I'm so sorry. I know how sad you are and I hope that God can help give you peace with whatever the outcome. Thinking of you.

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  8. Not the news you wanted to hear, I know. I am so, so, sorry! Thinking about you and praying so hard.

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  9. I just found your blog and I wanted to tell you that I am so sorry :/ I know how devastating it is. My heart always sinks when I read blogs like this. I'm praying for you girlie.

    waitingforbabybird.com

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  10. I'm so sorry. I will be thinking of you!

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  11. I have always felt like, if someone has to go through all the infertility crap you have to deal with before you even get to IVF, that the procedure should be guaranteed to work perfectly on the first try... it's just not fair for it to happen any other way. And even though we are all holding out hope that you will still get your happy ending, I know it still sucks to be at the point you are at, so I'm sorry :(

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  12. I have been thinking about and praying for you so much the past few days and I'm so sad to read this. :( If it offers any hope, a good friend of mine had the exact same thing happen and on their second IVF (they only have one or two embryos left so they decided to do a fresh cycle) they got their daughter, who is about to turn 2 years old. So, it may NOT be connected to your eggs, but may just be bad luck. :( (That's what her RE told her.) So many strong hugs to you. I can't imagine what you're going through. :(

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  13. Oh Amanda, I'm so sorry you got such terrible news today. I have been checking your blog all day for the update, I was really hoping for better numbers for you :( You're right though, we have such an amazing God, anything is possible with Him. I'm praying so hard for you, I really hope that you get a great surprise Monday!

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  14. I'm SO sorry. Saying prayers for you for a miracle. Big hugs.

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  15. I'm so sorry!! You're in our thoughts and prayers. I know how horrible this is and we'll be praying hard that it turns around!! <3<3

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  16. Still so sad for you. Praying hard. Love you much, friend.

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  17. Amanda, I'm so sorry to hear this. I hope you find peace and strength, however this may turn out. Holding you in my thoughts.

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  18. Amanda, our hearts are with you and your husband. You are incredibly strong and brave.

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  19. I'm so sorry Amanda :( but i still pray that the Lord does big things here and a miracle happens! If this isn't the time I pray for peace over your heart. Hugs to you.

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  20. I'm so sorry your are going through this. I know at this point it can go either way so I will keep on hanging on to hope.

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  21. I'm praying that you have some late implantation and for a doubled beta #2. I know how hard this is, and how unfair. Sending you love, prayers, and hope for peace.

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  22. I know how difficult it is to still have hope after everything that you've been through… hang in there girlfriend. I'm thinking about you and saying lots of extra prayers. xoxo

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  23. I'm so so sorry, Amanda. This is the worst kind of news, and I can't imagine how your heart raced waiting for it and then the blow you experienced when it was over. I wish I could make it better for you. Keeping you in my thoughts, friend.

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  24. I am so sorry! My heart aches for you! :( I'm praying for a miracle! *HUGS*

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  25. I am so sorry. Thinking of you and praying for you. Love you.

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  26. I'm so sorry you got bad news yesterday. Still hoping that God works a miracle for you.

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  27. I am so sorry.. I will continue to pray for your miracle.

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  28. Damnit. I'm so sorry Amanda. I hope you receive a peace that passes all understanding as you wrap your brain and heart around all that's happened this past month. I know everything is exhausting and this seems like defeat, but I really believe it's just a stepping stone on a journey that will ultimately be successful. If you remember, our 3rd IVF transfer also resulted in an hCG of 6. The good part if/when you're able to see one at all, is that you'll most likely be able to move on pretty quickly from this cycle....in a physical sense. Take all the time you need to grieve and let yourself heal. xo

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  29. Oooof my heart is hurting for you Amanda. My only piece of advice is to cling to Him. ::Hugs::

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  30. Oh Amanda, I'm sorry. Out here hoping for you.

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  31. Big hugs and prayers during this time of uncertainty for you.

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  32. Praying you feel the Lord's presence during this time girl!!! xoxoxo

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  33. I'm so sorry. Praying!!!

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  34. Ugh, so sorry. Will be thinking of you today.

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  35. Oh Amanda, I'm so sorry!!! I've been thinking about you. I hope, hope, HOPE that you get surprisingly positive news today at your second beta. xo

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  36. Praying for you to see God's miraculous hand today.

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  37. I'm so very sorry. :( Many thoughts and prayers coming your way.... :)

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  38. I'm sad. Praying that Jesus will put hope in your heart today.

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