One thing about this "community" that I've become a part of via the internet and this little ol' blog is a real, genuine level of care and concern for the people who find themselves stuck in the same boat as us. My heart literally breaks when one of the girls that I've come to know and love comes to another bump in the road, experiences another failure, loses another child, etc. I can't count the number of times I've read a post from a fellow infertile to find real tears streaming down my face. It sucks to go through this. It is literally the worst thing that I've ever had to deal with, but it's incredibly difficult to watch others that I love go through it as well. Some days, I'm so, so thankful for the company, thankful for the friendship, thankful for the support, but most days, I'm begging the Lord to let my friend off this roller coaster. I've never met more deserving women of the name "mom" than I have through my blog.
I've said this before, but I'll say it again. When I first heard the diagnosis of unexplained infertility, I never, ever dreamed we would need IVF. We just weren't that broken. Sure, I talked about the what if's… I wanted to make sure my husband knew that I was ready to go the distance if the need arose, but I didn't believe it would. Not for us. However, I, like so many people, believed that if the need did arise, it would work, because IVF always works. The thought that IVF might fail was inconceivable. And then I did my research… 40%… 40% chance of success for any one IVF transfer. Which means that there is a 60% chance that IVF will fail (at best).
We get crazy excited about 40% odds because our odds have been so incredibly crappy before, but really, IVF only gives most couples twice the odds of a normal young couple (for one month)… for the price of a car. I remember hearing that within three cycles (IVF or FET) 80% of couples will succeed. Those are better odds. Sure, three cycles could cost upwards of $30,000, but 80% is pretty decent odds. So I settled back in my belief that IVF works for almost everyone. And those that it doesn't, surely it's women in their late forties, or men who had vasectomies, or some other crazy story… it's not regular, beautiful, healthy, vibrant young couples. But over the past couple of years, I've learned that all too often it is the beautiful, the young, the vibrant, the healthy couples who fail over and over again.
I remember telling my doctor my fears of failing at IVF. I was trying my darnedest to convince him to do further testing like karyotyping and natural killer cells… pull out the big guns now. He didn't bite. He asked where I was getting my information. I told him my friends. "You know that many people who need IVF?" he questioned. I explained that I blogged and by opening my little corner of the world up and telling my story I had come across countless women with stories of IVF failing. He shrugged off my concern. His words, not mine: "women on message boards are the most severe cases". I didn't take the time to explain the difference between a blog and a message board, nor to explain that his rationale meant that I must be a severe case. He's wrong, but I do get where he's coming from. His thought is that the women who turn to "message boards" have been at it longer… therefore, it's safe to assume that more of them will have failed.
Regardless of whether my friends suffer more losses and failures because they are the "severe" cases or not, my friends are hurting. It sucks. Today, one of my favorite ladies, Aubrey, got some really awful news. She just finished her fresh IVF retrieval from CCRM, arguably the best IVF clinic in the country, only to hear that only two of her eggs fertilized. I literally do not know what I would do if I received that phone call. But Aubrey is so strong (she's from Boston after all)… within moments of hearing the news, she made the decision to go again. Aubrey has been down this road before. She's been kicked when she's been down more times than anyone deserves. CCRM isn't her first choice, it's her "last" choice, it's her last hope of conceiving and carrying a child of her and her husband's making. She's thirty years old… thirty, not forty-five. This was her fifth egg retrieval… not her first rodeo. She has not been one of the 80%, and my heart breaks for her. Tears literally streamed down my face as I read her blog today.
The saddest part is that Aubrey is one of many. She is not alone in her feelings of failure… this is something nearly every woman dealing with infertility faces, but I think it's different after an IVF failure. IVF is supposed to work. Another friend is gearing up for her sixth transfer after she completes some additional tests. How can this be? She is a young, beautiful, smart dentist… this shouldn't be this hard. She has endured so much in this journey already, but she's not giving up. And then there's my friend, Suzanne; her story is particularly touching. Suzanne is also headed to CCRM in the coming months for a donor egg cycle. She recently had a crushing blow when her long awaited IVF cycle at her "local" clinic yielded only two eggs, neither of which survived long enough to be transferred. Talk about a tough blow. Suzanne is so loving, tender-hearted, and caring, yet she is also tenacious… she deserves her miracle.
And there are so many others. Literally too many to list. My blog roll is FULL of stories that regularly bring me to tears. I'm not surprised any longer when IVF fails one of my friends, but I am still broken-hearted. My frustration and anger on their account is white hot some days. They have sacrificed so much to be mothers… and they are asking for one. None of them believe they will go on to have a large family… they are giving everything they've got to bring home a miracle. And in the midst of my fury, my frustration, my sadness, my mourning, I question "why do I think we will be any different?". And obviously, on some level, I do believe that. For whatever reason, I am clinging to the belief that IVF will work for us, or I wouldn't go down this road. But why do I think our situation will turn out any differently? Hear me when I say this, I desperately want a child, but I do not deserve one any more than Aubrey, or Nikki, or Suzanne, or Kimberly, or Emily. IVF is not an easy choice. It's a long, stressful, expensive journey that brings a chance of a bring home baby. The question "is it worth it?" has to be answered (sometimes again and again) long before the outcome is known.
I remember telling my doctor my fears of failing at IVF. I was trying my darnedest to convince him to do further testing like karyotyping and natural killer cells… pull out the big guns now. He didn't bite. He asked where I was getting my information. I told him my friends. "You know that many people who need IVF?" he questioned. I explained that I blogged and by opening my little corner of the world up and telling my story I had come across countless women with stories of IVF failing. He shrugged off my concern. His words, not mine: "women on message boards are the most severe cases". I didn't take the time to explain the difference between a blog and a message board, nor to explain that his rationale meant that I must be a severe case. He's wrong, but I do get where he's coming from. His thought is that the women who turn to "message boards" have been at it longer… therefore, it's safe to assume that more of them will have failed.
Regardless of whether my friends suffer more losses and failures because they are the "severe" cases or not, my friends are hurting. It sucks. Today, one of my favorite ladies, Aubrey, got some really awful news. She just finished her fresh IVF retrieval from CCRM, arguably the best IVF clinic in the country, only to hear that only two of her eggs fertilized. I literally do not know what I would do if I received that phone call. But Aubrey is so strong (she's from Boston after all)… within moments of hearing the news, she made the decision to go again. Aubrey has been down this road before. She's been kicked when she's been down more times than anyone deserves. CCRM isn't her first choice, it's her "last" choice, it's her last hope of conceiving and carrying a child of her and her husband's making. She's thirty years old… thirty, not forty-five. This was her fifth egg retrieval… not her first rodeo. She has not been one of the 80%, and my heart breaks for her. Tears literally streamed down my face as I read her blog today.
The saddest part is that Aubrey is one of many. She is not alone in her feelings of failure… this is something nearly every woman dealing with infertility faces, but I think it's different after an IVF failure. IVF is supposed to work. Another friend is gearing up for her sixth transfer after she completes some additional tests. How can this be? She is a young, beautiful, smart dentist… this shouldn't be this hard. She has endured so much in this journey already, but she's not giving up. And then there's my friend, Suzanne; her story is particularly touching. Suzanne is also headed to CCRM in the coming months for a donor egg cycle. She recently had a crushing blow when her long awaited IVF cycle at her "local" clinic yielded only two eggs, neither of which survived long enough to be transferred. Talk about a tough blow. Suzanne is so loving, tender-hearted, and caring, yet she is also tenacious… she deserves her miracle.
And there are so many others. Literally too many to list. My blog roll is FULL of stories that regularly bring me to tears. I'm not surprised any longer when IVF fails one of my friends, but I am still broken-hearted. My frustration and anger on their account is white hot some days. They have sacrificed so much to be mothers… and they are asking for one. None of them believe they will go on to have a large family… they are giving everything they've got to bring home a miracle. And in the midst of my fury, my frustration, my sadness, my mourning, I question "why do I think we will be any different?". And obviously, on some level, I do believe that. For whatever reason, I am clinging to the belief that IVF will work for us, or I wouldn't go down this road. But why do I think our situation will turn out any differently? Hear me when I say this, I desperately want a child, but I do not deserve one any more than Aubrey, or Nikki, or Suzanne, or Kimberly, or Emily. IVF is not an easy choice. It's a long, stressful, expensive journey that brings a chance of a bring home baby. The question "is it worth it?" has to be answered (sometimes again and again) long before the outcome is known.
Hugs for you and prayers for all the decisions!!!
ReplyDeleteI feel ya! I have this conversation with myself and my husband quite often.We have made our decision over and over again. I don't think I will be able to go on knowing that we didn't give it our all... I hope you make a decision that is best for you and that you are content with! You deserve to be a mom!
ReplyDeleteThis is a really powerful post... I've asked myself this question many times, amongst many other questions! Once you begin investing your heart and soul into IVF, you force yourself to believe that it will be worth it, despite the bumps in the road. Our alternative is a GC, and I'm just not ready for that yet. Praying for you!
ReplyDeleteOh my goodness. Tears!! They were streaming down my face reading this post and then they just POURED out when I read what you wrote about me. And I know just what you mean in every word that you've written here. The thing is, you HAVE to believe it will work... Somehow... Someday. Otherwise, we wouldn't be trying at all... Right? I'm so thankful for you and my blog friends, too... But know just what you mean when you say that you cry and feel for everyone else, too. That's what makes our bonds so strong- it has to be :). I believe for me (even though after what I have been through, it may sound crazy!) and for you that it will work... Somehow... Someday. Love you, friend!!
ReplyDeleteSo thankful for your friendship and thankful for your heart. I'm praying that you receive peace about all of the upcoming decisions! :)
ReplyDeleteI cried when I read these stories too. This is such a great post! Beautifully written. I think about you guys too a lot. <3
ReplyDeleteThis has to be one of the most beautiful post I have read. These are questions we all ask ourselves. Sometimes we just have to go in blindling believing things will work out. Trust me when I say I know how you feel. IVF is our next step and I always fear that it wont work.
ReplyDeleteSo much truth in this post. Thanks for writing it out. And as sucky as it is to know so many women who've had IVF fail...I would rather go into it KNOWING that it's a very likely scenario, rather than just hearing statistics and a few folks who it worked for and assuming that would always be the case. Eyes wide open is better.
ReplyDeleteIt's true that, through blogging and message boards, we hear more about the sad stories. But then in my everyday life, I hear people say things in passing like "Oh, she had an IVF baby." Once people succeed they don't often talk about it, in my experience. It's tough because we never know if it will work. There is never a guarantee. It's always about taking a risk (often a very expensive one), with the possibility of more heartbreak.
ReplyDeleteYou may not deserve a baby more than any of the wonderful women you mentioned, but you definitely deserve one just as much. It can be so hard to not give up hope-- but there IS hope!
Ooooohhhh girl, you nailed it. Infertility just takes and takes ... then takes some more. All I can say is don't give up; never give up. I am NOT an optimistic person. I see everything as a glass half empty, and my IVF journey has been way different that I thought it would be. But Aubrey, Suzanne, Nikki, so many women - including me - are not giving up. IVF is such a crazy rollercoaster, but I've had that short-lived moment of joy, and it is worth it. It can work. Don't give up.
ReplyDeleteYou put to words exactly how I've always felt! I am 27 and I've had two failed IVFs and most recently, a failed IUI using donor sperm. How is that even possible? I always thought our cases would be the easiest, but in the end it seems like the luck of the draw. I know so many women with "worse" cases than mine who get pregnant on their first round of IVF with twins. Sometimes it just feels unfair.
ReplyDeleteIVF is a gamble, but I understand why you question if it is worth it. If adoption were an option for us, we would have foregone IVF altogether.
In the end, we just have to keep believing that things will work out for us in the end. We are all here cheering for you xo
Such a wonderful post and I'm sure many- if not all of us have felt these same thoughts. Going through IVF I have been so thankful for this community, but so many times I thought, "I know too much". Because we do see so many stories of heartbreak. It's not easy, friend.
ReplyDeleteIt's true that most of us are here because we have been at it a while with no success. So I guess yes we see maybe the not so great stuff more so than success (which seems all over the place in the real world..ggrrr). Anyway there just is no answer for why it works for some people and not for others BUT you have to keep faith and keeping praying that it will work for you :)
ReplyDeleteTears. Tears are streaming down my face. You got me at the 'we just want one'. XOXO this blogging community is amazing. I would be in a VERY different place without it
ReplyDeleteAmanda, thank you so much for your beautiful and kind words. You are right, this road of infertility can be so unfair and so heartbreaking, but I am SO glad I have this virtual community to turn to. As a sounding board, as a support system, as a means to finding out more about what is out there. If you do move forward with IVF, you will have this support and yes, it's an unknown road, but you could be a success story! I will be here for you! xoxo
ReplyDeleteI can really identify with the thought about not being broken enough for IVF. I remember thinking that exact same thing when we were TTC the first time. And then after Harriet, I NEVER thought that we would have to do IVF again. I just felt like we had "paid our dues" and expected God to throw us a bone. But in the midst of an IUI cycle that seems to be failing completely (that's never happened before), IVF is looking more and more like the route we will have to take for our second child. All of this is to say - I hear you.
ReplyDeleteAnd lastly, I will answer the question that this post poses with a billion yeses.