Wednesday, April 16, 2014

Where We Sit

My mind is a swirly mess of deep thoughts these days. Between preparing to close on our first home, researching adoption, researching CCRM, and discussing our remaining four embryos, it all just feels like a mess of BIG stuff. One day I think I'm on top of it, and the next it just feels overwhelming again. Today is one of the latter days.

As far as the house goes, believe it or not, I think this might work out. If I'm still supposed to be terrified of it all falling through, I guess I just don't know any better. Our offer has been accepted by the seller, we've submitted all of the loan paperwork, the house appraised for a sufficient amount... it just feels like the boxes have been checked. But, we don't close for another three weeks, which feels like forever... I'm guessing there is still stuff to be done that I don't know about yet. But you guys, the house is so cute! I can't wait to post photos. It has an adorable little backyard with a great space for entertaining. The yard is currently in need of a little TLC, but worst case scenario, I'll just pay Erika to come lovingly sing to my brown grass. Buying a home is a complicated process with a lot of steps that I'd never heard of, but I'm just hoping that we've dotted enough Is and crossed enough Ts that it's not all going to fall apart now.

As far as adoption goes, we're still researching. We're still talking to adoptive parents. I'm still reading. But truth be told, we're feeling pretty good about adoption. I'm still not sure that I'd say we've been called to adopt, but maybe it's enough that we simply want to adopt. We've got a couple of meetings scheduled in the next several weeks with a few adoption agencies and adoption professionals to ask all of our (8 million) questions. We think we know who we want to go with, but I of course need to do a little due diligence to make sure.  You may remember that I have commitment issues when it comes to stuff like this. We're getting there though, and I know that, because my biggest issues swirl around ethical concerns (knowing we're working with an ethical agency) rather than attachment concerns (worrying about loving an adopted child).

As far as CCRM goes, oh man, I don't know. I'd love to go to CCRM and have all our dreams come true*. I'd love to cycle one more time, and finally get to experience a pregnancy. But I'm just not sure I can do it. Do I want to? Yes. Should I? I don't know. The money is a HUGE deal... CCRM would be $30,000 easy... more likely $35,000ish after all is said and done. That's for one more IVF cycle. That doesn't include the costs accrued if the first transfer fails... assuming that we have embryos to freeze, it would be several thousand more dollars for each attempt at a transfer. Are children worth that price tag? Absolutely. Is the chance of better eggs yielding better embryos ending in a successful pregnancy worth that? I don't know. I guess it would come down to what that chance is... 90% definitely, 70% maybe, 50% ummm, 30% probably not, 10% definitely not. Julia brought up some great points a few weeks ago. She said the success of CCRM is in their lab, and their Comprehensive Chromosome Screening (CCS) increases their success rates. Something like 80% of women using their own eggs do CCS at CCRM. After the testing, CCRM only transfers genetically normal embryos, which means that in at least 80% of the transfers, CCRM transfers genetically normal embryos... no wonder they have such good success rates. I say all of this not to detract in any way from the quality or caliber of CCRM, but rather to suggest that without knowing the success rates of the 20% or so who don't do CCS, we really don't know what our odds might be without the tests… maybe it would be 40% rather than 77%.  If Sam and I are unwilling to do CCS testing (which is still debatable, but seems unlikely) then I'm not sure that CCRM can help us any more than FIRM or RBA or any other clinic.  BUT, I definitely still need to talk with a doctor there and get some questions answered before we decide to close the IVF door forever.

And as to our four remaining embryos in Florida, well, things are just confusing. I had a phone consult with Dr. Duffy to discuss our next steps today. Sam and I discussed it before the consult and decided that we're really only interested in pursuing an FET as a next step if we can transfer all four. Dr. Duffy didn't think it was a terrible idea since it's still debatable whether we even have four embryos (that 3 cell is questionable). However, he highly recommended the Endometrial Function Test that he mentioned last time before moving ahead. He still feels like we have a significant chance with our remaining embryos and his words were, "I wouldn't want you to waste them all on a transfer without knowing the quality of your uterus." Ughhhhhh. Can I just admit that I don't want to drag this out any longer? The EFT requires a mock cycle and a biopsy... after it's all said and done, I'm guessing it would be an additional $1,000. But I feel awful about even considering the transfer without the test if he thinks it's that big of a deal. I certainly don't want to risk our embryos in an environment that they can't survive in. But if I'm being abundantly honest, I just don't have much hope for the embryos we have left... healthy uterus or other wise. The EFT feels like simply prolonging the inevitable to me, but Dr. Duffy seems to disagree. I'm not sure what would happen if I pressed the issue, but I got the feeling today that he'd refuse to transfer all four embryos if we don't do the EFT. And I really can't see transferring two more embryos again... not 3 cell and 6 cell grade 3 embryos.

So that's where we sit... in a jumbled mess of BIG decisions. I have no idea where we should go from here. When people ask how I'm doing, I reply "fine," but that's code for tired. Next month marks three years of trying to conceive and I am exhausted. I feel physically broken and mentally confused, but ultimately I'm just tired. I know that there are a ton of couples who have been at this so much longer than we have... five, six, seven years. The thought of three more years like this is more than my mind can handle. I was not made for the marathon... endurance has never been my thing. But onward we will go because what else can we do? And though I don't feel confident in this moment, I do feel confident that we will resolve this, we will research and wrestle until we feel confident. The big mess will eventually whittle down into a recognizable something and we will move forward from here. I may not know where we're headed exactly, but I'm sure that we are on a journey somewhere.

*By looking into CCRM, I'm not suggesting that an adopted child would be second best or that we wouldn't feel as if our dreams came true through adoption. IVF at CCRM is simply an option, and one that would allow us to experience a pregnancy. We're researching options, but that doesn't mean that we aren't excited about the idea of adoption.

17 comments:

  1. I feel overwhelmed FOR you, ha. It seems like you take the situations that took me 2 years to research and mentally sift through and consolidate that into 3 weeks. I'm exhausted on your behalf. Ha. It was definitely researching adoption agencies (and finding honest reviews from adoptive families AND birth families) that made me want to throw up more than any other aspect of infertility/adoption...which is why we ended up going the independent route. I just...UGH. NO.

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  2. As far as the house stuff goes it sounds like it's yours. As long as you don't go making big purchases or switching jobs you are set! Banks don't like to see instability so wait to buy furniture or IVF services that cost lots of money for the next 3 weeks. Once you sign on all those lines (and at closing you will see what I mean) then you're golden!!

    With the baby stuff, tough call. I see your point with the genetic testing of embryos before transfer. That could/would certainly pad numbers for CCRM. I've never put much emphasis in statistics. I just do what feels right what my gut tells me.

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  3. This post stresses me out for you guys! SO much to think about and deal with. I will be praying along your journey!

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  4. Ugh. I know it's so hard, but I feel like you're thinking through everything so logically and thoughtfully! If it were me I think I might go for the EFT just so that you can know for sure if that's an issue for you or not and will never be a question. I have wondered in the back of my mind if I might have endometriosis, so I feel like I would want to have a laproscopy (or something like that) done before we ever tried IVF or adopted embryos.
    Sending you hugs! This would all be SOO much easier if it weren't so damn expensive! Pardon my language, but seriously. There's no other way to describe it, right?!

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  5. That is all so overwhelming - no wonder you feel tired! I'm sorry you have to make such difficult decisions. I hope you find peace with whatever you choose.

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  6. First off I am SO proud of you for continuing to examine all of your options and do ALL of the research that comes along with. Of course you are tired. This process is so emotionally and mentally exhausting. And I completely understand your "I'm not built for a marathon". I'm right there with you friend. I feel like I would be comfortable with ANY of the options if I knew they would grant me a bring home baby sooner rather than later. It's the not knowing that's so hard. I wish I had some fantastic advice for you but all I can say is that you are taking all of the right steps and I know you'll find the best option for you and Sam. You know you are always in my thoughts and prayers! Super excited about the house and can't wait to see pictures!

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  7. Oh wow. It's so hard to make these decisions. I remember wishing so badly that someone could just make the choices and decisions for me! I know that you will make the best decision for YOU! You will figure it all out- I just know it :)

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  8. i hope you are able to figure out everything you need to figure out. and good luck with the house since that seems pretty certain to happen at this point. crossing my fingers that everything goes smoothly for you with that!

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  9. So many decisions! Praying for clarity for each possibility. Can't wait to see pics of the house!!!

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  10. This is a lot to weigh. There's so much to think about! I've been there my friend, it is hard.

    Congrats on your new home! It sounds like it will give you and hubby something joyful in your life. I love doing little home reno projects, they are good for my soul!

    Ps) not to add to your financial stress, but ccrm would also charge around $4k for their mandatory one day work up. Gag.

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  11. Hi Amanda,
    I recently found your blog and am finally up to date on all your posts. I have loved reading your view points on things and am so relieved to know that others out there feel the same way about things as I do.

    Several of your more recent posts have taken words right out of my mouth! I told my husband a couple months ago that I've started feeling jealous and a bit annoyed at those couples who get pregnant with an IUI. When I remember feeling nervous with each of mine. But now that we've gone through our first IVF and are waiting to move forward with FET #1, those things seems to simple and I so wish I could've been one of the "lucky" ones to have an IUI work for us.

    Anyway, I'm rambling. I'm just so glad to have found your blog, as I was starting to wonder if I was the only one still "in the trenches" as you've said. But I now know I'm not. Thanks for sharing!

    -Darla

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  12. You are allowed to be tired and understandably so. Making decisions on staying or going is so hard! I don't think you should let a delay of doing an EFT become too daunting. If you are truly considering CCRM, their process takes a looooong time from the one day work up through until any type of retrieval and/or FET anyway...as you already know I'm sure. They definitely take their sweet time making sure they've done every test before proceeding. I'm pretty sure they do an endometrial biopsy as well, so maybe it would be good to just do it now with your current doc and have the results whether you stay or go? Just a thought.

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  13. Excited about the upcoming house - you are right - it's a long process, but will be so sweet if/when you get it!!! Hope you get that peace about next steps through adoption/CCRM - I know there are so many decisions to make, but trusting God will give you guidance in each and every one!

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  14. Oh sweet friend. I hate that you have to sit where you're sitting right now. Ugh, these decisions suck; you don't deserve it. I hope you are guided to what's the very best for your family. :) Enjoy your new home.

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  15. I'm so sorry you're tired and feeling stressed. My heart goes out to you…I know it's hard. I know you're not asking for advise (so forgive me if this is unsolicited and thereby unappreciated) BUT I think you should do the EFT. I've always approached every decision with not wanting to look back and have regrets. Your doc sounds like he's being diligent with wanting to make sure your last embryos are being transferred into a good, healthy uterus. It's possible that your uterus was the problem with your other embies….I just hate to see you giving up on those frozen embies without trying everything to transfer them into a good home. I know you'll figure out what is right for you…hugs!!!

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  16. I just wanted to let you know that I'm reading along and sending many good thoughts your way.

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  17. I hope everything works out with the house! As far as the fertility stuff, I'm so sorry you are facing such tough decisions. I think it would be worth pursuing the FET at your current clinic before moving onto CCRM if that is what you decide to do. I took dexamethasone for my last cycle, because I was also afraid of my body rejecting the embryos. I don't know if that was the key, but it was the cycle that I finally got my positive test with.

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