Tuesday, February 11, 2014

Thinking Thoughts

Ummm, yeah so some parts of Georgia may have slightly overreacted after the last snow storm. Today brings "wave 1" of Snowpocalypse 2.0 which means that it's currently snowing sleeting raining here in Athens. But hey, I can use a good rain day. In everyone's defense, it's all about the temperature. I talked to my mom this morning who lives about 30 miles northwest of me and she said it's snowing (and sticking) like crazy, so I guess it's all about the temperature in your area. Sad trombones for us here in Athens. Hoping "wave 2" packs a slightly more serious punch when it comes through tonight. If it's going to be cold and gross, it better snow buckets!

Anyway, the real purpose of this post is not to update you on the Georgia weather… I'm pretty sure the national news is waiting with baited breath to see us look like idiots again anyway. No, of slightly more importance than the rain/sleet/snow falling from the sky, is the follow up consultation I had yesterday. It would be better classified as a "follow up chat" because it lasted a total of twelve minutes and I didn't get to consult him about anything. Mm hmm, you read that right. I managed to get together an entire page of questions and I got to ask exactly one of them, and I got zero answers for my hard work. Ughhhh.

Essentially, Dr. Duffy apologized for our failed cycle several times, which I guess is nice, but I don't know, it just seemed like a waste… lets move on, especially if I only have twelve minutes of your time. He also said that he didn't want us to give up after this one IVF which kind of let me see the writing on the wall… he doesn't think we'll be successful from the FET(s). He said he'd like to add in growth hormone to our next IVF cycle. I was kind of thrown for a loop… I was thinking different protocol or something like that, but he thinks the biggest issue with the cycle was not my response to meds (I do) but oocyte quality (and that too), so growth hormone should help. He then spent several minutes trying to explain why I shouldn't be upset that we didn't use growth hormone for the first cycle because "no one would have predicted a woman at my age, and with my AMH would have poor quality eggs"… umm, I'm pretty sure I predicted that, but whatever.

The only two things he said regarding the FET is that he wants me to discuss two things with Sam. A- doing a day 3 transfer of our two best vs thawing and growing all six to day 5. And B- doing an Endometrial Function Test before doing the FET. Both of those things kind of caught me off guard. As to growing the embryos to day 5, why would we do that when he recommended a day 3 earlier? And why would we expect grade 3 embryos to make it to day 5? I'm just confused about that… I'm thinking about it like he requested, but I'm not sure what I'm supposed to think. As to the EFT, it was so out of left field. I'd specifically asked about the E-tegrity test (the Beta 3 integrin biopsy that CCRM uses) at our first consultation and he said there was no need, but now he's wondering about uterine quality… why? Have mercy, but if we have to overcome egg quality and a hostile uterine environment, we should give up now. I can't imagine how many cycles or how many transfers it would take to get everything just right with both of those issues in affect…. more than we have money for, that's for sure.

So essentially, I'm thinking, thinking a lot. I'm just not sure what I'm supposed to think about any of this. My one question that I managed to slide in before he ended our phone conversation was "what are our chances with any of the transfers?" He refused to answer with anything other than, "our current clinic success rate for FETs is about 40%"…. umm, so not helpful. I'm beyond frustrated and beyond confused. Where do we go from here?

I think the snow rain day calls for a little break from all of this thinking though… off to take Erika's recommendation and catch up on Revenge.

14 comments:

  1. So glad I can offer useful advice and recommendations to help you through life. ;) Also...that 'consultation' sounds pretty disappointing. Boo. I'm sorry. :(

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  2. We did Omnitrope (growth hormone) for our third fresh IVF cycle, we retrieved the most eggs that cycle and it's likely that the ones that finally stuck this time around were from that batch. So growth hormone is worth a try. Sorry that everything has been so frustrating, I wish they could be more optimistic about your FET.

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  3. All of those questions sound very valid and ones that I would have loved to hear the doctors' answers to. I'm right there with you on the frustration aspect! It's hard to make decisions when you don't have all the information or the reasoning behind the recommendations. Personally, I'd like another (a real) consultation, maybe even sending in the questions in ahead of time so you can get them out there at the get go, or another opinion altogether if this isn't possible.

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  4. I'm so sorry you "consultation" (if you can even call it that...12 minutes is ridiculous) didn't go the way you hoped. I can't imagine all the emotions you must be feeling right now. I will be praying for you and your heart as you decide what the next best steps are for you. I know you've talked about CCRM but I couldn't say enough wonderful things about Nashville Fertility. We had an amazing experience (and I would be saying this even if we weren't pregnant this round) and never once felt like just a number. Every staff person that I encounter was caring, compassionate, and made me feel like they truly cared about our concerns, fears, worries, and offered to help us any way they could.

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  5. Please let me know if you want any information or if there are specific ways I can be praying for you.

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  6. What a frustrating experience. I do like the idea of adding in the growth hormone. Trust me I sympathize with the sh*tty egg quality, because hey I'm right there with you. And I thought if this cycle fails then our next step would definitelyl be donor eggs. But the growth hormone is an interesting concept. Like you need MORE options to consider and decisions to make.

    Just know that we are all here for you and cheering you on. I trust that God will lead you to the right decision for you guys. Always thinking about you and praying for you frend :)

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  7. Let me know if you want my opinion. Love you, girl. So sorry this is happening.

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  8. I'm so sorry you didn't get answers. My follow-up was very thorough, even though the IVF wasn't the problem, really...
    Is there any chance you could get a second opinion? Not necessarily right now, I think taking a break sounds like a good plan, but before moving on. I think CCRM does phone consultations but I'm not sure... From what I've read on other blogs, I have the impression that CCRM does an extremely thorough pre-cycle workup. Which is expensive and takes time, depending on your case you may not even learn much, and of course there can still be surprises, but it gets them in a more informed position than most other places before starting a cycle. Mind you, I've never been there, I'm just observing. Which is all to say that I'd consider finding out what such a clinic would recommend before your next cycle.
    Hang in there! Wishing you peace, and much more luck for the next round, whether that's a FET or a fresh cycle.

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  9. First, the snow comments you posted are pretty funny... i couldn't believe last week turning on the tv to watch the madness in GA unfold over 2.5" of snow. Here in Jersey we had gotten 16" and tomorrow we're slated for another 12". We need spring to get here fast! LOL

    And regarding your "consult"... UGH... do you think maybe a second opinion with another clinic is in order? Second, i'm wondering why you only got 12 minutes... i know it's hard and overwhelming, but I think you should maybe see if you can either sit down with him again and discuss further so all of your questions are answered, or maybe even see if you can email them to him. I know doctors are busy, but you are giving them THOUSANDS of dollars. He shouldn't be so vague about things. Just my two cents :)

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  10. Take a deep breath. Try not to let the thought of having some plausible uterine issue and a quality issue combined. You don't even know if there is a uterine issue, and if you did have both issues, you will be joining the ranks of so many other women who've dealt with both successfully....on top of even more issues, all at the same time.

    I know it's so frustrating to bring stuff up to your doc, they say "unnecessary" and then later on they are like "Let's try this!" Been there! One thing I've realized, is that some docs do the least amount of things possible to see if they can achieve success first before adding more aggressive measures, and then other docs just throw the whole kitchen sink at the problem from the very start. Ultimately, IVF is a dart throwing match to see what sticks, and as many tests as they run, sometimes it just takes trying a few different things to see what you respond best to. I wish some of us didn't have to try so many different things, but that's what it takes sometimes.

    Did your RE mention anything about taking CoQ10 or DHEA for egg quality? Hang in there Amanda! One day at a time!

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  11. Totally agree with Emily. Granted, I'm older than you but I was taking Coq10 and growth hormone and it didn't help with my quality. What I've learned is that wherever you go, the doctors are just making educated guesses and trying to make it work, if it doesn't, they try something different....and on down the line. Again and again...if new be. It's a process. But it's a process that sucks when you're in it and I'm so sorry you're frustrated and confused. Hoping you get clarity...or that you don't need it because your FETs could still work. Try not look past them and give up on your embies before they've even had a chance.

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  12. I've hated every re group/follow up call I had with my doctors for those same reasons... They made me want to pull my hair out!! I'm here for you if you need anything- to talk through different scenarios or just to vent. I know how taxing this can be- it all is already but then to have to add other options into the mix is so hard! I remember saying so many times "I just want someone to tell me what to do". XOXO

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  13. I am frustrated for you, my friend. I don't understand doctors. I realize we aren't the ones with the fancy degrees hanging on our walls, but a the same time, we are in fact pretty close to experts at knowing our own bodies.

    I agree with Emily and Jessah. Look at all your options. I also took CoQ10, DHEA and HGH during IVF, and it did nothing for me. But other women seem to swear by it (of course, the ones that are successful would, right?)

    Sending you the biggest hug ever. I know you and Sam will make the best decisions for going forward.

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