Tuesday, August 27, 2013

Ruffled Feathers

First of all, let me take a moment to say thank you! Y'all are so sweet to care about our appointments. Thanks for the love and the prayers yesterday... even Sam was feeling the love, so THANKS!

Unfortunately, yesterday was kind of a frustrating day. Don't get me wrong, at this point, I'm a firm believer that all information is good information... it may not be what I want to hear, but it's good information to have. However, with that said, yesterday was a lot of what I didn't want to hear. You may remember that we decided to go in with a BUNCH of questions to our two consultations. Our first consult was with Dr. Massey at Servy Massey Fertility Institute. This appointment, overall, went better than I expected, but I didn't go in with very high hopes. Dr. Massey was really nice. He answered ALL of my questions very thoroughly. He did call me "subfertile" rather than infertile, so I kind of wanted to punch him in the face, (my new biggest pet peeve!) but he meant it as a "thumbs-up" kind of thing, not a "are you two sure you know what you're doing?" kind of thing, so I resisted. He also called me "needy" and "high maintenance" and had a good chuckle with Sam over that, but I'm the first to admit this, so I let that slide. Particularly because in reference to question number six, "What will my level of contact be with the office? Will I have a direct way to speak with someone?", he simply rattled off his personal cell phone number. This scored him some MEGA points! He did try to convince me that I didn't want to freeze sub-par embryos, but when I pushed, he said he'd allow me to freeze whatever I wanted. The biggest thing that I liked about him and the office was that I would see him; I would have direct interaction with him at each monitoring appointment, and of course the cost savings is pretty huge. The greatest deterrents were:
  1. location-both the main office (it took right at 2 hours to get to the appointment, even at 10am) AND the retrieval and transfer office (Augusta) require a good bit of travel
  2. frozen embryos- there is an additional charge to freeze more than 8 embryos, and the FET success rates are moderate
In between our morning and afternoon appointments, we had time to swing by IKEA and to have a yummy lunch at Vini Vidi Vici. It's one of Sam's favorite restaurants, but it's in Atlanta and kind of pricey, so we never go. Sam had his favorite pasta and I had a yummy panini. In the midst of the business people of Atlanta discussing uber important things like real estate purchases and business mergers, we discussed my uterus and things like that. Good times.

The appointment at RBA was kind of blah. I don't really know what I was hoping for, maybe an offer for free IVF?!? Essentially, he didn't have a reason why IUI #4 failed, but when pushed, he said that at this point, he assumes we have either an egg quality issue or an embryo quality issue. Sad face times a million. He's hopeful that it could still be a fertilization problem (that ICSI would solve), but he doesn't really think that's it. I asked about the falling success rates and he suggested that it was probably due to the number of DOR patients they have been seeing in the last few years. He suggested that RBA is one of the top clinics and that women turn to them when they either fail at other clinics or when they are turned away by other clinics. This was one of those moments when my feathers kind of got ruffled. In my opinion (and in my experience) CCRM is the ULTIMATE collector of these types of patients. In fact, I currently have three blog friends who are cycling there and one more who intends to if her current cycle fails (fingers crossed). My point is this: CCRM takes them all, the non-existent AMH, the rejected, the repeat fails, and yet, they have a 65% success rate. I don't think a few additional DOR patients really explains a 10% decrease in success rates. In my opinion, CCRM has the right to charge $13,080 for IVF for 65% success rates, but RBA doesn't have the right to charge $13,500 for 34% success rates... see where I'm coming from? Needless to say, his reasoning kind of ruffled my feathers. However, he made a really strong case for them in regards to future children. In his opinion, going through RBA is like securing a sibling. He's pretty darn confident that we will have success and that we will have frozen embryos. The question then becomes who do I entrust with these embryos? He argued that they have one of the most sophisticated labs and freezing techniques, and they have the stats to back it up. They do significantly more FETs that most clinics and have a 50% success rate for each transfer. This is pretty huge to me.
That along with the convenience of the Gwinnett office are the two biggest perks. The things I don't love are:
  1. cost (obviously)
  2. contact with the clinic- it's apparently completely plausible that I could complete my ENTIRE IVF cycle and never see Dr. Slayden. He doesn't do monitoring appointments and transfer and retrieval will be by whoever is on call. I find this odd, and immensely frustrating.
I really hoped that after yesterday's two appointments I would be coming here to yell you guys our plan. Unfortunately, I'm not. Shocking, I know. The Greavu's are nothing if not thorough (err, slow) at making decisions. The good news is that we left both appointments on the same page (miracle), so we won't have to wrestle for the right to decide (I'd obviously win).  If you've hung with us this long, thanks, I promise some day we'll decide on something and actually move forward. Until then...

13 comments:

  1. Bah!!! I'm sorry neither appointment was more enlightening. How frustrating!! And how weird that you could do your whole cycle at RBA w/o ever seeing Slayden! That's just bizarre.

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  2. Frustrating. :( I'm so sorry it's been a struggle to find the right IVF clinic for you. The information you gathered IS a lot of think about. It is encouraging to know that you and your husband are on the same page, though. I hate that this has to be so difficult. I hate that you have to go through this. And, sub fertile? Who says that? It reminds me of the time I needed to prove I was infertile to get a referral from insurance to my current infertility clinic. Ummm ... How about I've been trying to have a baby for almost two years??? Praying for you.

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  3. I always hate it when decisions don't come in an "ah ha" moment. I like clarity!! I wish you'd gotten more of that to make this decision easier. Know that I've been thinking of you constantly lately as I know you've been struggling on the next step and I've been there.

    Awesome...blame it all on the DOR patients. (Please imagine me sticking my tongue out at that doctor) :)

    Biggest of hugs and lots of love coming your way.

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  4. Choosing an IVF clinic is so mind boggling. It's bad, but of course I'm already contemplating what we'll do if our last two FET attempts at our current clinic fail. All I can say is that once you make a decision, don't look back. Give it your all and don't second guess it. Take it one step at a time and put your faith in whatever doctor you choose.

    I am also curious why no one ever mentions anything about Conceptions Reproductive Associates of Colorado. They actually have better fresh transfer rates than CCRM, comparable frozen rates, comparable % of DOR patients (just less cycles overall) , and cost less from what I can tell. I can't quite figure out why I hear nothing about them though. Is is just that CCRM has gotten to much media attention and Conceptions has not?

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  5. Bleh. I'm sorry that neither place got the thumbs up. Good job preparing all those super important questions for the appointments. I just wish they had better answers for you. I would've decked the doctor who used the term "sub-fertile." What the heck?! That sounds like a freezer. His brain cell count is sub zero!

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  6. I'm sorry the appointments left you feeling frustrated. Can I just say how impressed I am with your level of knowledge and expertise on all this? I wouldn't have even known to ask about half the things you mentioned. You're my infertility information hero :)

    I know whatever decision you make will be the best one for your circumstances. It sounds like there are advantages to whichever route you choose.

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  7. Wait- did a doctor seriously give you his cell phone number?!?! WOW!

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  8. Hi,
    I've been following you blog for a while but actually never left a comment. I know it's incredibly hard to choose the right route. There are so many clinics, so many options and so much frustration!!!! I just wanted to share my experience and help you decide what the best option is for you. I've been through a lot in my life, trying to get pregnant for 7 years and I finally did only because I've done plenty of research and chose the best clinic for me. I'm not going to lie I'm not having the easiest pregnancy, but the most important fact is that I finally got pregnant the first time in my entire life with twins! So, I wanted to share the facts that I learned throughout the years which hopefully can help you to get pregnant with the first IVF try. Yes, it is possible if you do it right! Unfortunately it took me 7 years to find out:(
    So, the first must is to choose the clinic with the best success rates. Then, you should do a hysteroscopy ( to check for any intrauterine pathology; great lining is crucial for implantation and nobody checks it for you unless you insist on it). I had a polyp which was interfering with implantation, so it was removed during the procedure. Also, you might have an intrauterine endometriosis, so it has to be removed as well. There are so many things they don't tell you!!!!!!
    Secondly, you must do genetic tests. Once again, it was a problem for me and that's why my embryos were bad quality. So, what you need to do is a PGD test, which is done on your embryos after they fertlize your eggs with sperm. I had 19 eggs, then 14 fertilized (always do ICSI btw) and all I had left was 3 super healthy AA quality embryos ( two of which implanted right away). I hope I didn't miss anything crucial, but please fell free to get in touch with me. I know what a crazy roller coaster this ride is!!! I'm still struggling to believe that I got pregnant and I still feel so deeply for all of you who are going through this nightmare! Julia
    my email is: askmeanytimeuwant@gmail.com

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  9. I'm sorry things are not clearer after all that information! I did have a very good experience with RBA, but realize my time with them included a different course of treatment. I have a friend going through IVF with them now, and really had to demand some face time with the doc (which she did get). I can't believe the docs are so uninvolved in these complex procedures!

    So, no words of wisdom from me. :( Other than I hope you feel confident in your decision!! You're doing everything you can to make a good one.

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  10. I'm sorry that yesterday's appointments didn't end with a clear path forward. Thinking of you and praying you come to a decision that brings you peace.

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  11. ...until then we are here for you! I am sorry that you didn't have a clear winner, but it is good thatyou are both on the same page and can arrive at a decision together! That is importnt!

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  12. I know this probably won't make you feel any better, but we are at a large clinic with many doctors and it's not often that I actually get to see MY doctor. I feel very comfortable with many of the other doctors, so it has worked out okay for us. You may connect with some of the other doctors as well. Thinking of you....

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  13. Wow. This is a lot. The good news is that both of them sound like great clinics...like, GREAT. For what it's worth, we rarely if ever saw our doc during our IVF cycle and it was just fine. The other docs were great, seemed very informed about our specific case, and they got me pregnant. For me, not seeing my primary doc wouldn't be a deal breaker, but that's just me.

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